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H.R. 5397: Newborn Screening Saves Lives Act of 2006

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H.R. 5397: Newborn Screening Saves Lives Act of 2006

109th Congress · introduced 2006-05-16 · Health · Latest: Referred to the Subcommittee on Health.

federal

Follow this bill, step by step

  1. Where it came from: introduced 2006-05-16 · official record
  2. Who proposed it: Rep. Roybal-Allard, Lucille [D-CA-34] · what a sponsor is
  3. What happened next: no floor votes in our records yet. Why?
  4. Where it stands now: Referred to the Subcommittee on Health. Not final yet: this can still change. We check for updates every day.
  5. If it becomes law and spends money: follow the money to money laws, then agencies and contracts and grants.

What does this mean?

Official title

Newborn Screening Saves Lives Act of 2006

Plain summary

Newborn Screening Saves Lives Act of 2006 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA), to awards grants to eligible entities to: (1) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (2) develop educational programs about newborn screening for parents, families, and patient advocacy and support groups; and (3) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders. Requires the Advisory Committee on Heritable Disorders in Newborns and Children to: (1) recommend a uniform screening panel for newborn screening programs that includes the heritable disorders for which all newborns should be screened; and (2) develop a model decision-matrix for newborn screening program expansion. Directs the Secretary to adopt or reject any new or pending recommendations by the Advisory Committee. Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) provide for quality assurance for screening laboratories; (2) provide for population-based pilot testing for evaluating use of new screening tools on a mass scale; (3) collect, analyze, and make available data on certain heritable disorders; and (4) operate regional centers for the conduct of applied epidemiological research on the prevention of such disorders.

Congressional Research Service summary (Introduced in House), quoted unchanged (nonpartisan). Read the source.

What a vote does

A “Yea” vote

If it passes both chambers and is signed, it becomes law.

A “Nay” vote

If it is not passed, current law stays as it is.

PSI Sci description of the legislative step (not an opinion).

What does this mean? (plain words)

Official text

Newborn Screening Saves Lives Act of 2006

Source: Congressional Research Service summary (Introduced in House)

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The strongest published arguments

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Alternatives

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How did my representative vote? · This bill's floor votes

Officials and money

Sponsor: Rep. Roybal-Allard, Lucille [D-CA-34] · 7 cosponsors

Cost estimate: No cost estimate published yet.

Cosponsors on this site

Michael K. Simpson (R-ID), Shelley Moore Capito (R-WV), Danny K. Davis (D-IL)

No linked floor roll calls in our collected records yet. This does not mean the bill has never had a vote. Check the official bill history.

Sources

Record fed-us-cong109-hr5397 · catalog fed-us-congress-bills-cong109 · updated 2026-11-15 by psicol fed-bills-cong109