H.R. 5265: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008
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H.R. 5265: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008
110th Congress · introduced 2008-02-07 · Health · Latest: Became Public Law No: 110-361.
federal
Follow this bill, step by step
- Where it came from: introduced 2008-02-07 · official record
- Who proposed it: Rep. Engel, Eliot L. [D-NY-17] · what a sponsor is
- What happened next: 1 recorded vote in our records. Latest: House roll call 633 (2008): On Motion to Suspend the Rules and Pass, as Amended, HR5265 (2008-09-24), Passed. See all
- Where it stands now: Became Public Law No: 110-361. (final step reached)
- If it becomes law and spends money: follow the money to money laws, then agencies and contracts and grants.
Official title
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008
Plain summary
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers. Authorizes the Muscular Dystrophy Interagency Coordinating Committee to evaluate the potential need to enhance the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy. Authorizes the Secretary of Health and Human Services to ensure that any data on patients that is collected as part of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) is regularly updated to reflect changes in patient condition over time. Requires the Director of the Centers for Disease Control and Prevention (CDC) to report to the appropriate congressional committees on MD STARnet and data collection. Authorizes the Secretary to provide prospective health outcome data on the health and survival of people with muscular dystrophy. Authorizes the Secretary, in carrying out a program to provide information and education on muscular dystrophy to health professionals and the general public, to: (1) partner with leaders in the muscular dystrophy patient community; (2) cooperate with professional organizations and the patient community to develop, issue, and update care considerations for Duchenne-Baker muscular dystrophy and other forms of muscular dystrophy; and (3) widely disseminate such care considerations as broadly as possible, including through partnership opportunities with the muscular dystrophy patient community.
Congressional Research Service summary (Public Law), quoted unchanged (nonpartisan). Read the source.
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Official text
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008
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How did my representative vote? · This bill's floor votes
Officials and money
Sponsor: Rep. Engel, Eliot L. [D-NY-17] · 123 cosponsors
Cost estimate: No cost estimate published yet.
Cosponsors on this site
Pete Sessions (R-TX), Richard E. Neal (D-MA), James P. McGovern (D-MA), Sanford D. Bishop, Jr. (D-GA), Betty McCollum (D-MN), Peter Welch (D-VT), Christopher Murphy (D-CT), Robert J. Wittman (R-VA), Ken Calvert (R-CA), Doris O. Matsui (D-CA) and 63 more.
Recorded votes
- House roll call 633 (2008): On Motion to Suspend the Rules and Pass, as Amended, HR5265 (2008-09-24): Passed
Words on this page, explained (1)
- Appropriation
- Money a legislature sets aside by law for a specific purpose. Government agencies may spend public money only as it has been appropriated.
Plain meanings written from linked sources. All words.
Sources
- Congressional Research Service summary (Public Law)
- Congress.gov
- Data: GovInfo BILLSTATUS bulk data (Library of Congress), BILLSTATUS-110hr5265.xml <https://www.govinfo.gov/bulkdata/BILLSTATUS/110/hr>
Record fed-us-cong110-hr5265 · catalog fed-us-congress-bills-cong110 · updated 2026-11-15 by psicol fed-bills-cong110