H.R. 594: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

113th Congress · introduced 2013-02-08 · Health · Latest: Became Public Law No: 113-166.

federal

Follow this bill, step by step

Where it came from: introduced 2013-02-08 · official record
Who proposed it: Rep. Burgess, Michael C. [R-TX-26] · what a sponsor is
What happened next: no floor votes in our records yet. Why?
Where it stands now: Became Public Law No: 113-166. (final step reached)
If it becomes law and spends money: follow the money to money laws, then agencies and contracts and grants.

What does this mean?

Official title

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Plain summary

(This measure has not been amended since it was reported to the House on July 24, 2014. The summary of that version is repeated here.) Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH). Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers. Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living. Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy. (Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner. (Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.

Congressional Research Service summary (Passed Senate without amendment), quoted unchanged (nonpartisan). Read the source.

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What does this mean? (plain words)

Official text

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Source: Congressional Research Service summary (Passed Senate without amendment)

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How did my representative vote? · This bill's floor votes

Officials and money

Sponsor: Rep. Burgess, Michael C. [R-TX-26] · 113 cosponsors

Cost estimate: No cost estimate published yet.

Cosponsors on this site

Doris O. Matsui (D-CA), Sanford D. Bishop, Jr. (D-GA), Sam Graves (R-MO), Pete Sessions (R-TX), Peter Welch (D-VT), Edward J. Markey (D-MA), Julia Brownley (D-CA), Adam Smith (D-WA), Robert J. Wittman (R-VA), Diana DeGette (D-CO), Brett Guthrie (R-KY), Betty McCollum (D-MN), James A. Himes (D-CT), Richard Hudson (R-NC), Chellie Pingree (D-ME), Janice D. Schakowsky (D-IL), Yvette D. Clarke (D-NY), Chris Van Hollen (D-MD) and 53 more.

No linked floor roll calls in our collected records yet. This does not mean the bill has never had a vote. Check the official bill history.

Words on this page, explained (2)

Authorization: A law that creates or continues a government program and says what it may do, often with a suggested spending ceiling. An authorization alone does not provide money; a separate appropriation does.
Securities: Financial investments that can be bought and sold, such as stocks and bonds.

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Sources

Congressional Research Service summary (Passed Senate without amendment)
Congress.gov
Data: GovInfo BILLSTATUS bulk data (Library of Congress), BILLSTATUS-113hr594.xml <https://www.govinfo.gov/bulkdata/BILLSTATUS/113/hr>

Record fed-us-cong113-hr594 · catalog fed-us-congress-bills-cong113 · updated 2026-11-15 by psicol fed-bills-cong113