H.R. 5115: RARE Act of 2018
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H.R. 5115: RARE Act of 2018
115th Congress · introduced 2018-02-27 · Health · Latest: Referred to the Subcommittee on Health.
federal
Follow this bill, step by step
- Where it came from: introduced 2018-02-27 · official record
- Who proposed it: Rep. Carson, Andre [D-IN-7] · what a sponsor is
- What happened next: no floor votes in our records yet. Why?
- Where it stands now: Referred to the Subcommittee on Health. Not final yet: this can still change. We check for updates every day.
- If it becomes law and spends money: follow the money to money laws, then agencies and contracts and grants.
Official title
RARE Act of 2018
Plain summary
Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018 This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health. The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.
Congressional Research Service summary (Introduced in House), quoted unchanged (nonpartisan). Read the source.
What a vote does
A “Yea” vote
If it passes both chambers and is signed, it becomes law.
A “Nay” vote
If it is not passed, current law stays as it is.
PSI Sci description of the legislative step (not an opinion).
What does this mean? (plain words)
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The strongest published arguments
Arguments for (supporters)
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Arguments against (opponents)
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Alternatives
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How did my representative vote? · This bill's floor votes
Officials and money
Sponsor: Rep. Carson, Andre [D-IN-7] · 19 cosponsors
Cost estimate: No cost estimate published yet.
Cosponsors on this site
Eleanor Holmes Norton (D-DC), Mark Pocan (D-WI), Doris O. Matsui (D-CA), Brian K. Fitzpatrick (R-PA), Ro Khanna (D-CA), Julia Brownley (D-CA), Thomas R. Suozzi (D-NY), Ted Lieu (D-CA), Joyce Beatty (D-OH)
Sponsor's campaign money: Rep. Carson, Andre [D-IN-7] reported raising $1.1 million (2025–2026). Details. Shown for context only; it does not mean any donor supported this bill.
No linked floor roll calls in our collected records yet. This does not mean the bill has never had a vote. Check the official bill history.
Words on this page, explained (1)
- Bill
- A proposed law. It becomes law only if it passes the legislature and is signed by the president or governor (or a veto is overridden).
Plain meanings written from linked sources. All words.
Sources
- Congressional Research Service summary (Introduced in House)
- Congress.gov
- Data: GovInfo BILLSTATUS bulk data (Library of Congress), BILLSTATUS-115hr5115.xml <https://www.govinfo.gov/bulkdata/BILLSTATUS/115/hr>
Record fed-us-cong115-hr5115 · catalog fed-us-congress-bills-cong115 · updated 2026-11-15 by psicol fed-bills-cong115