H.R. 2155: Genetic Information Privacy Act of 2019
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H.R. 2155: Genetic Information Privacy Act of 2019
116th Congress · introduced 2019-04-09 · Health · Latest: Referred to the Subcommittee on Consumer Protection and Commerce.
federal
Follow this bill, step by step
- Where it came from: introduced 2019-04-09 · official record
- Who proposed it: Rep. Rush, Bobby L. [D-IL-1] · what a sponsor is
- What happened next: no floor votes in our records yet. Why?
- Where it stands now: Referred to the Subcommittee on Consumer Protection and Commerce. Not final yet: this can still change. We check for updates every day.
- If it becomes law and spends money: follow the money to money laws, then agencies and contracts and grants.
Official title
Genetic Information Privacy Act of 2019
Plain summary
Genetic Information Privacy Act of 2019 This bill prohibits commercial genetic testing services from disclosing consumers' personally identifiable information to third parties without the consumer's express consent. In the case of the disclosure of personally identifiable information for medical research, a genetic testing service must follow the federal rules for obtaining informed consent in the context of research involving human subjects. Further, genetic testing services must provide consumers with the option to consent to disclose a consumer's genetic information but not to disclose other personally identifiable information. A genetic testing service may not condition services on obtaining consent to disclose such information. The Federal Trade Commission (FTC) must promulgate regulations establishing how genetic testing services are required to secure such personally identifiable information against unauthorized access. The bill grants the FTC and state attorneys general powers to enforce compliance with the requirements of this bill.
Congressional Research Service summary (Introduced in House), quoted unchanged (nonpartisan). Read the source.
What a vote does
A “Yea” vote
If it passes both chambers and is signed, it becomes law.
A “Nay” vote
If it is not passed, current law stays as it is.
PSI Sci description of the legislative step (not an opinion).
What does this mean? (plain words)
Official text
Genetic Information Privacy Act of 2019
Source: Congressional Research Service summary (Introduced in House)
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The strongest published arguments
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Alternatives
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How did my representative vote? · This bill's floor votes
Officials and money
Sponsor: Rep. Rush, Bobby L. [D-IL-1] · 10 cosponsors
Cost estimate: No cost estimate published yet.
Cosponsors on this site
Dina Titus (D-NV), Ed Case (D-HI), André Carson (D-IN), Darren Soto (D-FL), Eleanor Holmes Norton (D-DC), Danny K. Davis (D-IL), Bennie G. Thompson (D-MS)
No linked floor roll calls in our collected records yet. This does not mean the bill has never had a vote. Check the official bill history.
Words on this page, explained (2)
- Bill
- A proposed law. It becomes law only if it passes the legislature and is signed by the president or governor (or a veto is overridden).
- Rulemaking
- The process agencies use to write regulations that carry out laws passed by Congress or a legislature. Usually an agency publishes a proposed rule, takes public comments, then publishes a final rule.
Plain meanings written from linked sources. All words.
Sources
- Congressional Research Service summary (Introduced in House)
- Congress.gov
- Data: GovInfo BILLSTATUS bulk data (Library of Congress), BILLSTATUS-116hr2155.xml <https://www.govinfo.gov/bulkdata/BILLSTATUS/116/hr>
Record fed-us-cong116-hr2155 · catalog fed-us-congress-bills-cong116 · updated 2026-11-15 by psicol fed-bills-cong116