H.R. 482: Newborn Screening Saves Lives Reauthorization Act of 2021

117th Congress · introduced 2021-01-25 · Health · Latest: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

federal

Follow this bill, step by step

Where it came from: introduced 2021-01-25 · official record
Who proposed it: Rep. Roybal-Allard, Lucille [D-CA-40] · what a sponsor is
What happened next: no floor votes in our records yet. Why?
Where it stands now: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions. Not final yet: this can still change. We check for updates every day.
If it becomes law and spends money: follow the money to money laws, then agencies and contracts and grants.

What does this mean?

Official title

Newborn Screening Saves Lives Reauthorization Act of 2021

Plain summary

Newborn Screening Saves Lives Reauthorization Act of 2021 This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases. Among its changes, the bill reauthorizes and makes mandatory the Hunter Kelly Research Program at the National Institutes of Health, and national surveillance activities conducted by the Centers for Disease Control and Prevention. The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.

Congressional Research Service summary (Passed House), quoted unchanged (nonpartisan). Read the source.

What a vote does

A “Yea” vote

If it passes both chambers and is signed, it becomes law.

A “Nay” vote

If it is not passed, current law stays as it is.

PSI Sci description of the legislative step (not an opinion).

What does this mean? (plain words)

Official text

Newborn Screening Saves Lives Reauthorization Act of 2021

Source: Congressional Research Service summary (Passed House)

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The strongest published arguments

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How did my representative vote? · This bill's floor votes

Officials and money

Sponsor: Rep. Roybal-Allard, Lucille [D-CA-40] · 57 cosponsors

Cost estimate: No cost estimate published yet.

Cosponsors on this site

Michael K. Simpson (R-ID), Katherine M. Clark (D-MA), Yvette D. Clarke (D-NY), Danny K. Davis (D-IL), Brian K. Fitzpatrick (R-PA), Jamie Raskin (D-MD), Diana DeGette (D-CO), Ken Calvert (R-CA), Nikema Williams (D-GA), Adam Smith (D-WA), Sean Casten (D-IL), Steve Cohen (D-TN), Kathy Castor (D-FL), Ruben Gallego (D-AZ), Ro Khanna (D-CA), Joe Neguse (D-CO), Lauren Underwood (D-IL), Judy Chu (D-CA), Tom Cole (R-OK), Rick Larsen (D-WA), Suzanne Bonamici (D-OR), Jahana Hayes (D-CT), Salud O. Carbajal (D-CA), Gregory W. Meeks (D-NY), James A. Himes (D-CT), Eleanor Holmes Norton (D-DC), Nanette Diaz Barragán (D-CA), Don Bacon (R-NE), Blake D. Moore (R-UT), Raja Krishnamoorthi (D-IL), Mark DeSaulnier (D-CA), Deborah K. Ross (D-NC), Suzan K. DelBene (D-WA), Julia Brownley (D-CA), Jefferson Van Drew (R-NJ), Gus M. Bilirakis (R-FL), James Comer (R-KY)

No linked floor roll calls in our collected records yet. This does not mean the bill has never had a vote. Check the official bill history.

Words on this page, explained (3)

Bill: A proposed law. It becomes law only if it passes the legislature and is signed by the president or governor (or a veto is overridden).
Rulemaking: The process agencies use to write regulations that carry out laws passed by Congress or a legislature. Usually an agency publishes a proposed rule, takes public comments, then publishes a final rule.
Statute: A written law passed by a legislature. A statute can be changed by a later law; changing a constitution needs an amendment.

Plain meanings written from linked sources. All words.

Sources

Congressional Research Service summary (Passed House)
Congress.gov
Data: GovInfo BILLSTATUS bulk data (Library of Congress), BILLSTATUS-117hr482.xml <https://www.govinfo.gov/bulkdata/BILLSTATUS/117/hr>

Record fed-us-cong117-hr482 · catalog fed-us-congress-bills-cong117 · updated 2026-11-15 by psicol fed-bills-cong117